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Dave first shared this very raw, emotional and powerful poem about living with Lyme on Facebook on 1st of August 2014. Within two days, there was 150 shares and very many comments - this moving poem about living with Lyme has helped not only further awareness, but also allow some to use it to explain to their family members how they feel/what they experience .
Whilst Dave is still battling to move forward in his own treatment - He and his wife Paula have fought for Lyme awareness with interviews, WWLP picture/video participation and various other activities since 2012. For more of their Lyme journey see : Main family page (in progress). |
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In October 2015, Dave uploaded 'Lyme Poem' to You-tube (opposite)
See below for the words and the link to the poem and comments when it was originally posted on facebook in 2014. |
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Lyme Poem
They entered my body from one tiny bite,
From a little tick which kept out of sight.
Borrelia, Bartonella, Babesia too,
I've also got Mycoplasma, I feel like a zoo.
I felt very sick, so pale no life,
My breathing then stopped, this shocked my wife.
She spent her time praying for me,
It is not how a newlyweds life should be.
The doctors said it was nothing to fear,
But they were so wrong, let me make that clear
Positive to Lyme and all symptoms fit,
Yet the doctors here still don’t know why I am sick.
Lupus, arthritis and rheumatism too,
These so called specialists don’t have a clue.
One plus one does equal two,
Please don’t tell me Lyme is not true.
Borrelia has screwed me from inside to out,
These bugs are killing me, there is no doubt.
Untreated Lyme for over 14 years,
Means the infections have spread to even my tears.
My treatments so hard, I think it’s to late,
To repair my body to its original state.
I deteriorate so fast, I am fragile and dying,
my wife holds me tight, we both start crying.
My body chills, cramps and shakes,
You can see my rash, but not my aches.
Stabbing burning and random pains,
Just like a voodoo doll in some twisted game.
Bones, joints and muscles they don’t get a rest,
If I pass out now it will be for the best.
From lights to sounds and odours I smell,
Truly makes each day a living hell.
Gluten, dairy and sugar free too,
No more red meat because it makes me spew.
My memory is gone, its missing inside,
I look for the answers but my brain is fried.
My bed gets soaked from drenching night sweats,
Thanks to these bugs, my life is at threat.
This disease is smart and hides so deep,
From skin to bone, and head to feet.
I swallow tablets and capsules and herbals too,
Needles to rife and also sauna’s to do.
I have all these meds to kill all these bugs,
This causes a herx, I will need a hug.
I make it through the toughest days,
The worst is over is what I pray.
But one step forward and three steps back,
My meds get changed, my future feels black.
I hurt so much, will it ever end,
This battle I fight is for my family and friends.
If pain was visible then you would see,
No one would swap their life with me.
Who would want this awful disease?,
No way not me, give me treatment, please.
The government here should be scared,
Of what little they know, or is it what little they care.
From a little tick which kept out of sight.
Borrelia, Bartonella, Babesia too,
I've also got Mycoplasma, I feel like a zoo.
I felt very sick, so pale no life,
My breathing then stopped, this shocked my wife.
She spent her time praying for me,
It is not how a newlyweds life should be.
The doctors said it was nothing to fear,
But they were so wrong, let me make that clear
Positive to Lyme and all symptoms fit,
Yet the doctors here still don’t know why I am sick.
Lupus, arthritis and rheumatism too,
These so called specialists don’t have a clue.
One plus one does equal two,
Please don’t tell me Lyme is not true.
Borrelia has screwed me from inside to out,
These bugs are killing me, there is no doubt.
Untreated Lyme for over 14 years,
Means the infections have spread to even my tears.
My treatments so hard, I think it’s to late,
To repair my body to its original state.
I deteriorate so fast, I am fragile and dying,
my wife holds me tight, we both start crying.
My body chills, cramps and shakes,
You can see my rash, but not my aches.
Stabbing burning and random pains,
Just like a voodoo doll in some twisted game.
Bones, joints and muscles they don’t get a rest,
If I pass out now it will be for the best.
From lights to sounds and odours I smell,
Truly makes each day a living hell.
Gluten, dairy and sugar free too,
No more red meat because it makes me spew.
My memory is gone, its missing inside,
I look for the answers but my brain is fried.
My bed gets soaked from drenching night sweats,
Thanks to these bugs, my life is at threat.
This disease is smart and hides so deep,
From skin to bone, and head to feet.
I swallow tablets and capsules and herbals too,
Needles to rife and also sauna’s to do.
I have all these meds to kill all these bugs,
This causes a herx, I will need a hug.
I make it through the toughest days,
The worst is over is what I pray.
But one step forward and three steps back,
My meds get changed, my future feels black.
I hurt so much, will it ever end,
This battle I fight is for my family and friends.
If pain was visible then you would see,
No one would swap their life with me.
Who would want this awful disease?,
No way not me, give me treatment, please.
The government here should be scared,
Of what little they know, or is it what little they care.
Below is the link to the 'Lyme Poem' and comments where it was originally posted on facebook.
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