Support Groups : Lyme Borreliosis Complex
Australian Based Facebook Support Groups
National:
Lyme Australia & Friends : Started 17th July 2012. Lyme Australia & Friends (LA&F) is a group that offers support for Lyme and associated illness'. It is open to people that have been diagnosed, or are simply looking at the possibility of Lyme & Co’s, as well as welcoming their respective family members/carers.
Lyme Australia & Friends : Started 17th July 2012. Lyme Australia & Friends (LA&F) is a group that offers support for Lyme and associated illness'. It is open to people that have been diagnosed, or are simply looking at the possibility of Lyme & Co’s, as well as welcoming their respective family members/carers.
Sarcoidosis, CFS, Lyme, MS, Lupus and Inflammatory Diseases and Bacteria: Started August 2012. A group for those who are interested in the role of bacteria in Sarcoidosis. CFS, Lyme, MS, Lupus and other inflammatory diseases and the use of antibiotics for the treatment of these inflammatory disease.
Regional:
Australian Capital Territory (ACT)
Canberra Lyme Disease : Started 21st March 2013 to support people in the Canberra region
New South Wales (NSW)
Lyme & Co : Started 12th March 2013 to support people in the NSW - Shoalhaven & South Coast Regions
Northern Territory (NT)
Lyme Online : A public information sharing page rather than a closed support group. From the page: Australia-based online meeting place for Lyme patients, and a source of Lyme disease information & news. First started in Darwin in 2012 and online in 2013
Queensland (QLD)
Queensland Lyme Disease : Started 11th July 2012. In order to raise awareness of Lyme, this group is public (anyone can see what is posted) rather than closed (as most other support groups tend to be for the privacy of the members posting).
South Australia
SA Lyme Team Started in 2013 to support people in South Australia, though has not an overly active group since 2016
Victoria (VIC)
Western Australia (WA)
Chrysalis Lyme Support Perth: CFS/ME and Lyme Youth / Family support group. Contact details: Ailsa Burgess, Mobile: 0426196422 or email Ailsa
Private Room - MSIDS Inc formerly WA Lyme Association: Started in 2012. Supporting MSIDS (Multiple Systemic Infectious Disease Syndrome) patients in Western Australia
Perth and WA Lyme Support Network : Started on the 13th July, 2012 as a closed support group, however has since (2016) been changed to a public group.
Yahoo Email Support Groups
The Facebook support groups appear to be the more popular way to communicate these days, though the original Lyme disease support groups / yahoo forums listed below are still active groups for those that prefer forum style of communication.
Lyme Oz : Has more of a focus on alternative treatments (rather than just antibiotics) available for Lyme than the Aussie Lyme group.
Aussie Lyme : To avoid confusion; this is different to the “Aussie Lyme” facebook group. It was started a number of years ago, before facebook was such a popular social medium; though is still an active yahoo group
Lyme Oz : Has more of a focus on alternative treatments (rather than just antibiotics) available for Lyme than the Aussie Lyme group.
Aussie Lyme : To avoid confusion; this is different to the “Aussie Lyme” facebook group. It was started a number of years ago, before facebook was such a popular social medium; though is still an active yahoo group
