Lyme Australia: Recognition & Awareness
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  • Forever Remembered
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      • Invisible by Karen Smith
    • Songs with a Twist of Lyme >
      • You're So Lyme
      • Hey Jeremy
      • I’ve Got Lyme
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      • I Feel Shitty
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      • Season of the Tick
  • Lyme Patient Stories
    • Queensland Stories >
      • Karen (Founder LARA)
      • Emily
      • Leah
      • Lucy
    • New South Wales Stories >
      • Janice
    • Victorian Stories >
      • Nichol

Support Groups : Lyme Borreliosis Complex


Australian Based Facebook Support Groups
National:

​Lyme Australia & Friends : Started 17th July 2012. Lyme Australia & Friends (LA&F) is a group that offers support for Lyme and associated illness'. It is open to people that have been diagnosed, or are simply looking at the possibility of Lyme & Co’s, as well as welcoming their respective family members/carers. 
Sarcoidosis, CFS, Lyme, MS, Lupus and Inflammatory Diseases and Bacteria: Started August 2012. A group for those who are interested in the role of bacteria in Sarcoidosis. CFS, Lyme, MS, Lupus and other inflammatory diseases and the use of antibiotics for the treatment of these inflammatory disease. 
​
Regional:
Australian Capital Territory (ACT)
Canberra Lyme Disease  : Started 21st March 2013 to support people in the Canberra region
​
New South Wales (NSW)
Lyme & Co : Started 12th March 2013 to support people in the NSW - Shoalhaven & South Coast Regions
​  
Northern Territory (NT)
Lyme Online : A public information sharing page rather than a closed support group. From the page: Australia-based online meeting place for Lyme patients, and a source of Lyme disease information & news.  First started in Darwin in 2012 and online in 2013
​
Queensland (QLD)
Queensland Lyme Disease : Started 11th July 2012.  In order to raise awareness of Lyme, this  group is public (anyone can see what is posted) rather than closed (as most other support groups tend to be for the privacy of the members posting).
​ 
South Australia
SA Lyme Team Started in 2013 to support people in South Australia, though has not an overly active group since 2016
​
Victoria (VIC)
Lyme Disease Victoria :  started 3rd February 2013 to support people in Melbourne, Victoria Region

Western Australia (WA)
Chrysalis Lyme Support Perth: CFS/ME and Lyme Youth / Family support group.  Contact details: Ailsa Burgess, Mobile: 0426196422 or email Ailsa  
Private Room - MSIDS Inc formerly WA Lyme Association: Started in 2012. Supporting MSIDS (Multiple Systemic Infectious Disease Syndrome) patients  in Western Australia
Perth and WA Lyme Support Network  : Started on the 13th July, 2012 as a closed support group, however has since (2016) been changed to a public group.  


Yahoo Email Support Groups
The Facebook support groups appear to be the more popular way to communicate these days, though the original Lyme disease support groups / yahoo forums listed below are still active groups for those that prefer forum style of communication. 

Lyme Oz  : Has more of a focus on alternative treatments (rather than just antibiotics) available for Lyme than the Aussie Lyme group. 

Aussie Lyme : To avoid confusion; this is different to the “Aussie Lyme” facebook group. It was started a number of years ago, before facebook was such a popular social medium; though is still an active yahoo group


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"Our lives begin to end the day we become silent about things that matter"  Martin Luther King Jr.

Lyme Australia Recognition & Awareness
© Karen Smith, B. Psych (Hons),  2012 -2020

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