NSW Lyme Disease Protest September 14th 2012

15/9/2012

This page is a place for everyone in Australia to register there support for Lyme disease Awareness Protest in Sydney on the 14th of September 2012. Added Note: This comments section was a last minute thought/addition on the afternoon of September 14th - with most comments being encouraged and posted on the facebook protest page. For those comments and support, please see the facebook event page: https://www.facebook.com/events/189313644535475/

6 Comments

Karen

14/9/2012 06:05:44

Testing comment: Lyme Disease is In Australia ;Myself and six family members contracted it in Nth Queensland!!!!

Anne Pitkin

14/9/2012 06:57:45

I contracted Lyme disease 30 years ago in the Coffs Harbour area.

Tina and Andrew

14/9/2012 07:22:39

We got Lyme right here in our home shire of Mundaring in WA. Another lady who lived just up the road from us has it too. Who knows how many others? We were sick for ten years before we heard about Lyme, got tested privately overseas and began treatment. We took lists of symptoms into doctors over and over and were turned away as it all being in our heads. We were so desperate to get our lives back. If I'd been treated early I might still be a useful member of society instead of having been off work and no longer able to do volunteer work for all these years. It is criminal that this disease is being ignored here!

jacqui butterworth

14/9/2012 20:20:47

I have had ME/Lyme disease for 25yrs and am getting tired of the doctors attitudes-when are they going to learn we are ill.

AILSA

15/9/2012 04:01:15

I,2 ofmykidsand a dog have lyme diagnosed in 3 different countries but still being told stint here and being refused treatment. People are dying and suffering ,time for huge fast change before this country has no workers only sick people.

Kate D

16/9/2012 02:34:48

Fifteen years of increasingly debilitating CFS and now I know it was Lyme & Co all the time. I consider myself lucky to be one of those whose symptoms are comparatively mild, but all the same I've lost a successful career, my own home and numerous relationships due to this illness.

Had Lyme not intervened in my life, I would still be out there working as a senior government employee, contributing to my community and paying hefty taxes. Instead I am now living on a Disability Pension; a liability on the tax system.

If I could prove that my infection occurred (as I suspect) during a work assignment, I would now be suing my former government employer for 15 years loss of income. Unfortunately I can't do that, but very soon somebody will be able to do so - because people are starting to become aware of the dangers of exposure to vector-borne illnesses. The government needs to be ready for that, because it's going to start costing them for their failure to provide 'duty of care'.

Our government's continued denial of the obvious existence of vector-borne bacterial illnesses represents extreme negligence because it not only denies proper testing and treatment to those currently suffering, but also risks exposing thousands more.

Where are the health warnings for the general public? Where are the OSH protocols for people working in high-risk situations? Where is the screening of blood supplies? Where is the stringent testing for imported livestock? And where is reliable testing and affordable treatment for those infected?!!

If the public is made aware of the risks of bites from bacteria- bearing vectors and prompt antibiotic treatment is administered, these infections do not need to develop into chronic conditions that totally destroy lives. This situation arises only because we have a government that persists with the misguided notion that a disease which exists everywhere else in the world must somehow respect our ‘official’ position and our national borders - a ludicrous assumption!

We don't really care if you continue to deny the existence of American "Lyme", but it is high time the Australian government pulled its head out of the sand and funded the research to identify whatever strain of bacterial illness IS making us all sick and what vectors are carrying it.

There are just too many of us now chronically ill with some form of Borrelia-like infection and the numerous co-infections associated with it. SOMETHING is making us ill and the Australian government has a responsibility to look this problem fair and square in the eye and initiate the research, treatment and awareness programs to address this issue.

So while the government may continue to deny the existence of this disease and tell us its ‘all in our heads’, we KNOW we are sick, we are daily growing in numbers, we have found our voices and we’re not going to go away.

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NSW Lyme Disease Protest September 14th 2012

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